Madeline

climbing up the polka dot tree

I love to watch this, sometimes often and other times not… but I love to see it.  The song is perfect… and Madeline is lovely.  I can’t stop missing her… enjoy and share.

 

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Being Thankful for Cancer: A Huffington Post article

Investigating Illness Narratives

This Huffington Post article caught my eye:

Dear Cancer, This Is How You’ve Made Me Thankful.

Zoe Lintzers reflects on how she has observed the experiences of loved ones with cancer, and how cancer has helped her to better appreciate the simple pleasures of life: She writes perceptively about these experiences and her own realizations, presenting a convincing argument for what others can learn from disease and human suffering. Is illness something we should be thankful for? Despite the revelations that it may catalyze, does it demand our gratitude?

It was sometimes hard for me to look beyond some of her diction choices, though. She mentions the aunts she lost to cancer. Then she proceeds to tell of how  “[t]here are the brave others in my family who have been diagnosed in the past six years and are in remission, having triumphed over a disease that makes our eyes…

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A Wish and a Wig Trade with Karen Gillan

Gold Ribbon Craft

Bronwyn’s Make A Wish Wish

When Bronwyn was first asked what she would like to wish for it was all about Dr. Who. She wanted to go to the Dr. Who Experience in Cardiff, visit filming sites in the area and maybe even the studio. If her treatment had gone according to plan she would have been done in the summer of 2012. She would have been able to travel soon afterward and had her wish. Maybe we would have even been able to meet Matt Smith, Karen Gillan, Arthur Darvill, Alex Kingston or any of the other wonderful people who have had a hand in Dr. Who’s creation! Who knows what would have been possible!

When Bronwyn suffered heart failure her dreams of any future were forgotten for a time. When she survived one of the things we came to realize were no longer possible was Bronwyn’s Wish. It…

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A bit of reality today

God'sfaith's Weblog

We are on a high from yesterday….lol…just a little….But, I want to talk about something else. John’s not acting quite right. It’s a funny thing, you can never know when a symptom means cancer is growing back or not. But, changes are not good most of the time.

here’s what I see. he has headaches that Tylenol is not relieving (symptom of possible building pressure in the brain), less stamina, lowered appetite, less endurance on his right side, falling more often.

What does this mean? who the heck knows, really. It means you call the oncology triage nurse. she runs through his symptoms and questions you about whether he is sleeping more than usual (yes) coherent (yes) vomiting (no) confused (no)….then she says if he vomits over the weekend please call and alert the er you are bringing him in. (he’s not a puker, so I doubt that would happen…

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Superman for Matthew

Knitting Rays of Hope

This amazing hero is Mighty Matthew Cech. Matthew was diagnosed with Mito disease complex I and III and Chronic Intestinal Pseudo Obstruction. This disease causes damage to cells of the brain, heart, liver, and skeletal muscles. It often makes a person feel very tired by stealing the body’s energy. Even though Matthew has been through so much in such a short period of time. He is still smiling that gorgeous smile. He likes to dress up as Mighty Matthew a super hero who is not afraid of anything and never gets tires. We are so proud to have been able to make such an amazing young superhero this hat. We are so happy to see it making him smile. Matthew our prayers are with you and keep smiling that beautiful smile. You can drop by and show support at his facebook page: Mighty Matthew.
~Vanessa

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A pebble in a pond becomes a boulder in a puddle!!!!!!!

God'sfaith's Weblog

Tonight I cried…a lot…John John became a fireman. His dream is fulfilled as far as he is concerned. Fireman Kevin is in charge and made him into a real fireman. With the drop of a hat or rather firefighter helmet. John is a real firefighter. Yes, im still crying. In all proper ceremony with a real helmet placed on his head with his name on it, a shirt tailored to his size. He is official. And, boy does he own that firehouse!

It was bitter-sweet for me. I cry because i have seen new symptoms in John John today that are going to bring us back to the oncologist on monday at the brain tumor clinic. I fear the unknown. I know that every day is a gift. I grabbed today with such ferocity that i probably choked its proverbial neck. I was filled with joy, cried with sorrow, and…

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Just wanted to say Thank You!

Thank you to everyone who follows my blog and gives me great support in what im trying to do! I really love all your nice comments and I love that so many people are willing to help me Raise Awareness! Thank you  guys! I love you! XoXo

I Presented :)

Tags

CCA, Childhood Cancer Awareness, Pediatric Cancer, Presentation, Senior Project

At least now 5 people are aware or more aware about  what the gold ribbon stands for! Every little bit helps! Im so happy that i presented, i was very nervous, but I was happy to be telling the judges about a great cause that needs more attention and needs more funds so we can find a Cure! I forgot several things in my presentation but i knew all of my facts by heart and gave my presentation. Now i just pray i got a good grade. 

My english teachers girlfriend was in the room and i didnt know who she was. She is a cancer survivor which was amazing! Im so happy for her and I pray she continues to stay healthy! It was really neat bc I knew she was but I didnt know she was in the room until after I presented! 

I dont think I could do any of this with out the help of my teachers Mr. Smith and Mrs. T-H and as well my principal and friends who supported me. I am so nervous talking in front of people. Everyone helped me a lot which I am greatly thankful for! 

Now I can Relax alittle!

Sooo…

I present tomorrow!! Im very nervous. Im so passionate about this that im actually scared of the possibility of me crying in front of the judges bc This is so sad! I hope when i get up there tomorrow i can change the way atleast one of the judges look towards pediatric Cancer! Side note* I actually met a neroblastoma cancer survivor today! She  goes to my school and it was so amazing to be able to speak with her today! She was very kind and let me ask questions! She is in remission! I hope that she stays healthy!  

Philippines: Cheaper Pediatric Cancer Drugs Raise Child Survival Rates

Scribbles of a Physics Teacher

An NGO-government partnership in the Philippines has improved access to treatment for pediatric cancer, a leading cause of death in children aged 1-14, according to the Department of Health.

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